OK People ya know what ya'll need to show some support to this website.
http://www.debra.org/
No only does my son have this skin disorder but I also have it. Show some love to this group or stop being a cheap ass and by a EB braclet. They are only a few dollars and the money goes to research. Epidermolysis Bullosa effects the skin. Children with worse kinds then I myself have suffer from open wounds and blisters all the time. You can't even think how painful it really is. My son and I have Simplex Dowling Meara. Which is the worst subtype of Simplex.
My son has open stops on his legs. When he was born there was no skin on his wrists, one elbow, knees, and ankles. With what he has it gets better as you get older. His spots are going away and his legs are far better then what they were at brith. For so smany children it never gets any better. I myself was worse. I was even traked at 3 days old till I was 3 months old. I do have a scar on my neck and you can see that I was traked. So Please go show some love and support. You have no idea what It means to children and adults with EB.
One Day Without Crying, One Day With No Pain
One Day Of No Suffering Those Blisters Again
One Day With No Dressings, Needles, Or Creams
One Day You'll Awaken With Laughter Not Screams
One Day Not Fearing The Slightest Tumble
And To Watch You Join In Your Friends Rough-And-Tumble
One Day Of Not Feeling Great Surges Of Guilt
For The Genes I Gave You, Imperfectly Built
One Day Of Not Having To Turn A Blind Eye
To The Ignorant Stares Os Some Passersby
One Day, In The Future, A Potion They'll Issue
To Toughen Your Skin That's As Storng As Wet Tissue
One Day A Complexion Of Peaches And Cream
Will Become A Reality, Not Just A Dream
One Day Without Crying, One Day With No Pain
One Day Of Not Suffering Those Blisters Again
.....One Day
That was writen by someone with EB....
