This was taken from Lilli's CarePage
Hi everyone,
Sorry it has taken so long to get back to you all with an update on how I am doing. But here goes. I have been a busy little girl growing I am up to 4 lbs 11 oz. I am now eating all my food from the bottle or breast and I am sooo glad too! I pulled my feeding tube out myself on friday night and my nurse didn't see a reason to put it back in. I am no longer on phenabarb. they told mommy that was just for my series of highda scan tests. Everything came back good. My stool is back to a normal color. All my labs came back good. One was for my bilirubin and something else, it showed that my gall bladder is still sludgy but that should correct itself. I had my second eye exam and it showed that I have ROP that is eye disease or prematurity. I am only a lew 1 and my eye Dr said that he is comfortable saying it might clear up on it's own. I get another exam tomorrow morning and then we will see what is going on if it is developing to more or not. Mommy will have to explain that to you all. Mommy talked to the head Neonatologist and he said I will be coming home on a monitor and my medicine caffiene. But not I am having more bradys and I have had to be stimulated a few times to come back . Usually I am self correcting but this reflux gets to me about once every 24 hours. Because it always happens about 15 to 20 minutes after I have had my bottle. It looks like that is the only thing stopping me from going home. Mommy took alot of pictures of me on her cellphone and will be setting up a link to show all of you me as I progress. Sheila said I look like a real baby now and I am soo cute! Everyone says that I am adorable to mommy and I smile alot. Even Stephen said I am cute. I got to see my sister Nichole the other day and I am glad cause it was a VERY sad day in the hospital. One of my room mates took a really bad turn and he didn't make it. Mommy cried for a long time and so did his mommy. His mommy came up to the room yesterday to find my mommy and she told me to stay strong and I was a living doll. I tried to talk to her but she didn't understand me. So mommy told her the angels were with him when he went to live with God. We are all trying to get back to being happy here in my room. I am now next in line to go home with my family. I can't wait ! Mommy can't wait either she tells me everyday I can't wait to get you home where you belong. She has been hurting for the past couple of days and doesn't stay with me long because she doesn't want me to feel that she is hurting but I do. I hope mommy feels better soon. The breast feeding lady gave mommy a breast shield that is like a bottle nipple to help me feed from her better. She used it for one feed and I didn't like it too much so yesterday she tried again with out it and I was so excited that I gulped my food and mommy had to slow me down. She worries too much that I am going to choke.(hehe)I love being close to mommy she is so warm and I am keeping my temp good now. I stay around 36.7 to 37.0 which the nurses say is perfect at 36.5 I was border line and they kept me bundled up in blankets. Now I only have 2 the one I am swaddled in and the one that mommy puts over me. But she keeps putting my hats back on I have to work to get them off. But I guess she must want me to keep them on so my head doesn't get cold. I am staying awake for a little while after I eat now so I can play with her and I have even had a few spits lately. But she tells me it's not the first time she has gotten spit up on. I am going to go play with the nurse now have a GREAT SUNDAY!!!!!!!!!
Love and kisses
Lillianna a.k.a The princess Lilli
